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My Stroke Journey refreshed for 2019

Cover of My Stroke Journey, a book for stroke survivors, families and carersProviding information to stroke survivors and their carers is critical for their recovery, and is recommended in the stroke Clinical Guidelines.

A useful tool in providing that information is the Stroke Foundation's own My Stroke Journey publication, which has been given to over 100,000 people since it was first launched five years ago.

The classic version of this much-loved booklet has now been completely updated to answer more common questions, as well as making it even easier to read and to navigate.

My Stroke Journey has four chapters, based on these questions:

  • What is a stroke?
  • How will my stroke affect me?
  • How do I take care of my health?
  • What happens when I leave hospital?

My Stroke Journey has updated information on treatment, including thrombolysis, endovascular clot retrieval and treatment for haemorrhagic stroke, rehabilitation, covering predicting improvement and making the most out of neuroplasticity, and reducing the risk of another stroke, including speaking to your doctor about whether it's safe to drink alcohol.

There is also an expanded section on discharge planning, with the checklist now focusing on what needs to be addressed for a safe and effective discharge.

And there are some great new stories from stroke survivors about their stroke journey, including our cover stars Paul and Wendy. Wendy had her stroke at age 60 and has worked incredibly hard on her recovery, with Paul by her side. They are long-term supporters of Stroke Foundation, the Australian Aphasia Association and the Australian stroke community.

Stroke survivors and families are incredibly diverse and providing information products that meet people’s needs will always be challenging, and always a work in progress. We’ve done our best to ensure things are explained simply and consistently and that information is not repeated.

Next on the list is reviewing our fact sheets to bring them into line with the new My Stroke Journey, and improving the Easy English version. We’re also looking at options to produce an aphasia friendly My Stroke Journey, and we're working with Queensland Aboriginal and Islander Health Council on a book for Aboriginal and Torres Strait Islander communities 

The new updated classic version of My Stroke Journey is available from the Stroke Foundation website.